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N.C. doctors conceal Lyme disease expertise (access required)

By Caitlin Coakley Since she was 10 years old, Tricia Kovacs remembers being sick and not knowing why. “It was documented that I was going to doctors seeking treatment for joint pain and things like that,” she said, “and no one could come up with a reason for why I was sick.” Though Kovacs was diagnosed with Lyme disease when she was 16, by the time she was in her early 20s her condition had persisted to the point where she could barely get out of bed, and every day was accompanied by an ache in her joints that would not go away. The disease had begun to affect her cognitive functions, to the point where she couldn’t drive because she didn’t recognize what a traffic light meant or couldn’t look up a page in a book. “I could count, but I couldn’t look at a number and know it was higher or lower than another number,” Kovacs said. “I was so sick.”

4 comments

  1. Great article!

  2. ‘Currently, Lyme Disease is treated with a range of antibiotics, e.g., tetracyclines, penicillin and cephalosporins. However, such treatment is not always successful in clearing the infection. Treatment is often delayed due to improper diagnosis with the deleterious effect that the infection proceeds to a chronic condition, where treatment with antibiotics is often not useful. One of the factors contributing to delayed treatment is the lack of effective diagnostic tools.’
    The above is a statement made by IDSA guideline authors to apply for a vaccine patent. However they did not include this information when writing their 2000 and 2006 IDSA Lyme Disease Guidelines.
    http://lookingatlyme.blogspot.com/2010/08/selective-and-collective-amnesia-or.html

    When it stinks follow the money.

    When we are so ill with Lyme, for years, that we just want to die, the risks of long term antibiotics especially when they can be seen to be helping are nothing. It is a win win situation.

    Thankfully I am recovered on long term antibiotics. It took 5 doctors and 3 rheumatologists 4 years to diagnose me. It was a sygnificant improvement in my symptoms on a chance course of antibiotics which led my GP to suspect Lyme. I had attended surgery at time of bites, rashes, summer flu’ and migrating arthralgias all red flags for lyme.

    As my symptoms deteriorated I was diagnsoed with Fibromyalgia, ME/CFS, Arthritis, Muscle weakness, Musculo skeletal Disease, Polymyalgia Rheumatica and then finally Lyme Disease. I am sure the steroids given for PMR diagnosis will have done far more harm than the oral antibiotics I have taken.

    I was retired early from the Civil Service on the grounds of ill health. At my worst I had difficulty standing from a chair and walking across a room, for 3 1/2 years I could not walk up or down stairs properly now I am recovered I have no pain or disability and can garden and cycle again.

    Shame on the IDSA and guideline authors for trying to supress research that supports ILADS Guidelines. This is an International medical disgrace.

    The truth will out one day but meanwhile patients need to get very well informed in order to fight for treatment that helps them.

  3. Sick in Colorado

    Blue Cross of Colorado just cut me off. People who cannot buy their own treatment are left to die an unbearably difficult death. And they call this “medicine.”

  4. The CDC members hold patents on lyme disease testing and have many vested interests. Patents are for PROFIT$. Barbara Johnson holds a patent with Smith-Kline in the European database and she is a CDC officer!

    They falsified the testing criteria at “Second National Conference on Serologic Diagnosis of Lyme Disease, in 1994. How many people have taken sick and died since then??

    Jemsek knows they committed scientific fraud.

    See the following Nick Harris report……he attended the conference! His lab DID NOT change the criteria and that is why more people test pos. on his test.

    http://www.illinoislyme.com/An%20Understanding%20of%20Laboratory%20Testing.pdf

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